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Young-Onset Parkinson’s

Parkinson’s Awareness

+3

Parkinson’s isn’t one disease.

May 8, 2026

•

2 min read

Parkinson’s isn’t one disease.

So it was never going to have one solution.

Richie Pikunis
Richie Pikunis

Young-Onset Parkinson’s

+3

Can DBS Trigger Uncontrollable Coughing?

May 7, 2026

•

1 min read

Can DBS Trigger Uncontrollable Coughing?

The DBS - Vagus Nerve Connection

Richie Pikunis
Richie Pikunis

Parkinson’s Awareness

+3

Caregivers aren’t confused.

May 7, 2026

•

3 min read

Caregivers aren’t confused.

They’re being given the wrong model.

Richie Pikunis
Richie Pikunis

Parkinson’s Awareness

+3

One person’s experience is not the disease.

May 6, 2026

•

2 min read

One person’s experience is not the disease.

But we treat it like it is.

Richie Pikunis
Richie Pikunis

Parkinson’s Awareness

+3

Advocacy has a problem.

May 5, 2026

•

2 min read

Advocacy has a problem.

And nobody wants to say it out loud.

Richie Pikunis
Richie Pikunis

Parkinson’s Awareness

+3

YOPD & DATING

May 5, 2026

•

2 min read

YOPD & DATING

The Real Game. No Safety Net.

Richie Pikunis
Richie Pikunis

Parkinson’s Awareness

+6

When Parkinson’s Looks Like a Crime

Apr 22, 2026

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3 min read

When Parkinson’s Looks Like a Crime

Misread symptoms. Real consequences. A system that still hasn’t caught up.

Richie Pikunis
Richie Pikunis

Parkinson’s Awareness

+3

Parkinson’s Disease and the Brain–Heart Connection

Apr 19, 2026

•

4 min read

Parkinson’s Disease and the Brain–Heart Connection

It’s Not Just Dopamine. It Never Was.

Richie Pikunis
Richie Pikunis

Young-Onset Parkinson’s

+4

You don’t die from Parkinson’s.

Apr 17, 2026

•

1 min read

You don’t die from Parkinson’s.

The truth behind a misleading phrase

Richie Pikunis
Richie Pikunis

Parkinson’s Awareness

+3

Parkinson’s Disease and Apathy:

Apr 17, 2026

•

3 min read

Parkinson’s Disease and Apathy:

The Symptom People Misjudge the Most

Richie Pikunis
Richie Pikunis

Young-Onset Parkinson’s

+3

If They Make You Happy... Make Them Happier

Mar 22, 2026

•

2 min read

If They Make You Happy... Make Them Happier

Because Parkinson’s may control the symptoms... but it doesn’t get to control what you give back.

Richie Pikunis
Richie Pikunis

Parkinson’s Awareness

+1

Too Smart to Be Heard

Mar 20, 2026

•

4 min read

Too Smart to Be Heard

How Parkinson’s advocacy got impressive... and stopped being effective

Richie Pikunis
Richie Pikunis

Parkinson’s Awareness

+3

Too Able to Be Disabled. Too Disabled to Be Able.

Mar 19, 2026

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4 min read

Too Able to Be Disabled. Too Disabled to Be Able.

Living in the brutal middle of Parkinson’s—where you look fine, feel anything but, and still get judged like nothing’s wrong.

Richie Pikunis
Richie Pikunis

Parkinson’s Awareness

+3

Panic with Wi-Fi

Mar 19, 2026

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3 min read

Panic with Wi-Fi

Why Parkinson’s support groups keep confusing confidence for competence

Richie Pikunis
Richie Pikunis

Parkinson’s Awareness

+2

The Slow Conversation

Mar 17, 2026

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3 min read

The Slow Conversation

Life After the Brain’s Middle Manager Gets Fired

Richie Pikunis
Richie Pikunis

Parkinson’s Awareness

+5

“Is levodopa causing dyskinesia and psychosis? And is it even worth taking?”

Mar 15, 2026

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4 min read

“Is levodopa causing dyskinesia and psychosis? And is it even worth taking?”

Parkinson’s forces hard bargains. Levodopa may cause problems later, but for many of us it’s still the reason we can move today.

Richie Pikunis
Richie Pikunis

Parkinson’s Awareness

+2

Negative Sleep: The Parkinson’s Trick Nobody Warns You About

Mar 15, 2026

•

6 min read

Negative Sleep: The Parkinson’s Trick Nobody Warns You About

Why eight hours in bed doesn’t always mean rest—and why both patients and caregivers wake up exhausted.

Richie Pikunis
Richie Pikunis

Parkinson’s Awareness

+5

“Parkinson’s Is Serious. Laughing About It Helps.”

Mar 14, 2026

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6 min read

“Parkinson’s Is Serious. Laughing About It Helps.”

The Science and Survival Value of Humor in a Dopamine-Depleted Brain.

Richie Pikunis
Richie Pikunis

Parkinson’s Awareness

+3

The Parkinson’s Energy Economy: Why Everything Suddenly Costs More
LockSimple

Mar 9, 2026

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6 min read

The Parkinson’s Energy Economy: Why Everything Suddenly Costs More

Parkinson’s doesn’t just slow movement. It quietly raises the price of existing.

Richie Pikunis
Richie Pikunis

Parkinson’s Awareness

+4

A Will Won’t Help You in an ICU Bed

Mar 9, 2026

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8 min read

A Will Won’t Help You in an ICU Bed

What health care proxies, durable powers of attorney, living wills, and wills actually do, and why people with chronic illness cannot afford to put them off.

Richie Pikunis
Richie Pikunis

Young-Onset Parkinson’s

+2

A Safety Net You’re Not Allowed to Climb Out Of

Mar 7, 2026

•

7 min read

A Safety Net You’re Not Allowed to Climb Out Of

Richie Pikunis
Richie Pikunis

Young-Onset Parkinson’s

+1

Why Parkinson’s Patients Lose SSDI (Even When They’re Clearly Disabled)

Mar 7, 2026

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4 min read

Why Parkinson’s Patients Lose SSDI (Even When They’re Clearly Disabled)

Richie Pikunis
Richie Pikunis

Parkinson’s Awareness

+2

It’s Not Just Shaky Hands: The Whole-Body Reality of Parkinson’s Disease

May 23, 2025

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5 min read

It’s Not Just Shaky Hands: The Whole-Body Reality of Parkinson’s Disease

By Richie Pikunis

Richie Pikunis
Richie Pikunis

Parkinson’s Awareness

+3

Depression vs. Apathy in Parkinson’s: Am I Sad... or Do I Just Not Give a Damn Anymore?

May 21, 2025

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3 min read

Depression vs. Apathy in Parkinson’s: Am I Sad... or Do I Just Not Give a Damn Anymore?

By Richie Pikunis

Richie Pikunis
Richie Pikunis

Parkinson’s Awareness

+4

Why I Never Gave Up—And What a 20-Pound Dog Had to Do With It

May 21, 2025

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4 min read

Why I Never Gave Up—And What a 20-Pound Dog Had to Do With It

(Still Shaking. Still Showing Up. Still covered in more fur than dignity.)

Richie Pikunis
Richie Pikunis
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Voice Unshaken

Voice Unshaken

Real stories. Real struggle. Real laughs. I’m Richie Pikunis—your tremor-powered megaphone, lifting your voice until you can howl for yourself. Join the movement giving chronic illness the roaring voice it deserves.


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